Erinna reports on use MY data’s workshop “Patient data – balancing access and protection: All talk and no access?”. The workshop focused on identifying issues preventing timely and appropriate access to patient data – and brainstorming ways to address those impediments.
The UKCRC Tissue Directory and Coordination Centre (UKCRC TDCC) held its annual meeting, UK Biobanking Showcase, on the 27th November. This year, the main themes included sustainability, quality and data management.
Putting Patients First UKCRC TDCC attended Patients First on 28th November, 2016 – an event co-hosted by ABPI and AMRC. Here we outline the day’s events and what we can learn from the topics discussed. The event was opened by Aisling Burnand, AMRC, with an inspiring quote by Mary Mead, ‘Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing… Read More »Putting Patients First
Nottingham takes Biobanking to Parliament The University of Nottingham will be taking Biobanking to Parliament next month. The UK Biobanking Timebomb: Maintaining Public Trust in Medical Research will be held at 2.30pm on the 25th October in Westminster as part of Nottingham in Parliament day. The day will be a celebration of the leadership the UK has shown in this field but also seeking improvements that can facilitate a… Read More »Nottingham takes Biobanking to Parliament
UKCRC TDCC attends Europe Biobank Week 2016 The UKCRC Tissue Coordination Cente attended Europe Biobank Week last week in its capacity as BBMRI.uk. The event was jointly organized by ESBB and BBMRI-ERIC and was a great opportunity to meet with the global biobank community. The week kicked off with a string quartet to reflect Vienna’s musical connections (right). Highlights included lots of discussions on quality, kicked off by Alain… Read More »UKCRC TDCC attends Europe Biobank Week 2016