Public support for transparency in biobanking The HTA and HRA have released a report, Consent to use human tissue and linked health data in research. This report details results from a series of workshops where the public shared their views on the topic. Although intended for the HTA and HRA, it provides examples of how to strengthen public support for biobanking and research participation. Consistent message about consent Five years ago,… Read More »Public support for transparency in Biobanking
The Health Research Authority (HRA) have published new guidance on taking a proportionate approach to consent, particularly in reference to clinical trials.
Directory registration now a condition of REC favourable opinion The UK Ethics Committee Authority (UKECA) have now made registration in the UKCRC Tissue Directory a condition of the Research Ethics Committee (REC) favorable opinion for research tissue banks (RTB). The Research Ethics Committee favour collection of tissue for future research use by research tissue banks, however, there is an expectation that this tissue is made visible to the research community.… Read More »Directory registration now a condition of REC favourable opinion