Wales Cancer Bank amends ethics to support COVID-19 research
In response to the UKCRC TDCC call, this biobank sought an ethics amendment to enable them to support COVID-19 research.
consent
GDPR for Biobanks – A sheep in wolf’s clothing?
In our latest blog post we hear from Heather Coupar from MRC’s Regulatory Support Centre about General Data Protection Regulation (GDPR).
The Health Data Research Innovation Gateway now live!
Health Data Research UK (HDR UK) has unveiled the first phase of the Health Data Research Innovation Gateway. The Gateway will enable researchers to find UK datasets related to their research.
GiveMySample.org – information for potential tissue donors
A free web resource for biobanks and medical researchers to share with their potential tissue donors.
New customisable biobanking game developed to help educate patients
King’s Health Partners Cancer Biobank at Guy’s and St Thomas’ and Focus Games have developed a digital biobanking game. Here, Dr. Cheryl Gillett, Head of Biobanking at King’s College London, tells us more.
MRC Regulatory Support Centre Human Tissue Forum
In this post, we hear from Jessica to find out more about the MRC Regulatory Support Centre’s recent Human Tissue Forum meeting.
Patient data – balancing access and protection: All talk and no access?
Erinna reports on use MY data’s workshop “Patient data – balancing access and protection: All talk and no access?”. The workshop focused on identifying issues preventing timely and appropriate access to patient data – and brainstorming ways to address those impediments.
Public support for transparency in Biobanking
Public support for transparency in biobanking The HTA and HRA have released a report, Consent to use human tissue and linked health data in research. This report details results from a series of workshops where the public shared their views on the topic. Although intended for the HTA and HRA, it provides examples of how to strengthen public support for biobanking and research participation. Consistent message about consent Five years ago,… Read More »Public support for transparency in Biobanking
New HTA codes of practice
New HTA codes of practice In April the Human Tissue Authority (HTA) published updated Codes of practice. This guest blog by Regulation Manager, Fiona Maleady-Crowe explains what this means for Biobanks. What are the Codes of Practice? The HTA’s Codes of Practice provide practical guidance on the human tissue legislation and set out the HTA’s licensing standards. The Codes are important resources which help researchers and establishments comply with our… Read More »New HTA codes of practice
The immortal life of Henrietta Lacks
The immortal life of Henrietta Lacks Today, samples donated for medical research are anonymised so that any work performed on them cannot be traced back to the donor. But donation for research has not always worked like this. In 1951, tumour cells from a patient in the USA were grown and sent all over the world, later to be traced back to her and her family. We discuss the implications… Read More »The immortal life of Henrietta Lacks